Dan went back to Mayo today for more labs and a visit with the doctor. His MELD score is close to what it was last week. His bilirubin count is higher and the doctor said Dan looked pretty yellow and even a little ash grey today. The good news is his red cell count is higher so he won't need a transfusion. His ammonia level is lower and the swelling looks a little better around his ankles. So hopefully the new meds are helping with all of these. However, there are a few new pukas (holes) in his leg that are leaking fluid, and at least one is infected. The doctor is referring Dan to 3 different doctors for this and a few other side conditions; he has appointments this week on Wednesday, Thursday, and Friday.
Here are a few prayer requests for this week:
* For healing of the leg infection.
* For the nausea to go away (this may or may not be caused by the meds)
* Dan had one basil cell carcinoma removed from his nose a few years ago, now there is a suspicious looking sore on his face, that's one of the appointments he has this week to check this out; we pray this will not be a serious thing and can be removed easily like the carcinoma.
* Dan will also be seeing a Mayo dietician this week. Dan's mom is a fantastic caregiver and cooks very healthy and I am so very grateful for her love and care of Dan. His doctor thinks the dietician can help even more with keeping Dan's protein low and getting him even healthier. I think Dan's mom will be going to this appointment with Dan.
So, it's looking to be a very busy week. Thanks for your prayers.
Debbie
Monday, February 18, 2008
Wednesday, February 13, 2008
Updates
On Monday, Feb. 11th, Dan had new labs and imaging and we met with the doctor.
For the past 6 months, Mayo has done very few, if any, liver transplants because of a shortage of livers available. New patients have been added to the list with fewer organs available. So, although Dan’s MELD number went up, he’s lower on the waiting list. This probably means our wait will easily be a number of months longer, and will continue testing our patience and prayers.
In the meantime, we will be working more aggressively through additional medications to treat the side effects mentioned in the previous blog entry. As the doctor told us, the hope is to get Dan as healthy as possible while he’s sick.
We continue to be thankful to Mililani Baptist Church and Hawaii Pacific Baptist Convention for your love and support, and for you who read these blog entries and have lifted us in prayer.
Still soaring (most of the time),
Dan and Deb
PS: If you are wondering how to leave us a comment, look at the white box right below and click on "0 comments" (or it might have a number then comments). You'll get a pop-up screen where you can type in a comment, then for "Choose an Identity" click the box next to "anonymous" or use your Blogger account, then click "Publish" or "Preview". You can also send an email to us.
For the past 6 months, Mayo has done very few, if any, liver transplants because of a shortage of livers available. New patients have been added to the list with fewer organs available. So, although Dan’s MELD number went up, he’s lower on the waiting list. This probably means our wait will easily be a number of months longer, and will continue testing our patience and prayers.
In the meantime, we will be working more aggressively through additional medications to treat the side effects mentioned in the previous blog entry. As the doctor told us, the hope is to get Dan as healthy as possible while he’s sick.
We continue to be thankful to Mililani Baptist Church and Hawaii Pacific Baptist Convention for your love and support, and for you who read these blog entries and have lifted us in prayer.
Still soaring (most of the time),
Dan and Deb
PS: If you are wondering how to leave us a comment, look at the white box right below and click on "0 comments" (or it might have a number then comments). You'll get a pop-up screen where you can type in a comment, then for "Choose an Identity" click the box next to "anonymous" or use your Blogger account, then click "Publish" or "Preview". You can also send an email to us.
Wednesday, February 6, 2008
Prayer Request and New Photos of Swen
I'm looking sooooo forward to my upcoming visit with Dan. I fly out Friday night (Feb. 8) and fly back Tuesday night (Feb. 12). Monday Feb. 11 is Dan's next labs, imaging, and doctor's appointment and we'll let you know what happens. In the meantime, we'd sure appreciate prayers for Dan right now. His legs are "leaking" again from the extreme swelling, this time from new pukas (holes). And he's starting to have dizziness, often after trying to read for any length of time, along with nausea and throwing up. For sure we will tell the doctor about all this on Monday.
Aloha,
Debbie and Dan
PS: If you are wondering how to leave us a comment, look at the white box right below and click on "0 comments" (or it might have a number then comments). You'll get a pop-up screen where you can type in a comment, then for "Choose and Identity" click the box next to "anonymous" or use your Blogger account, then click "Publish" or "Preview". You can also send an email to us.
Aloha,
Debbie and Dan
PS: If you are wondering how to leave us a comment, look at the white box right below and click on "0 comments" (or it might have a number then comments). You'll get a pop-up screen where you can type in a comment, then for "Choose and Identity" click the box next to "anonymous" or use your Blogger account, then click "Publish" or "Preview". You can also send an email to us.
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