Things that make you say "hmmm.....".
Dan got a call Saturday from the social worker at Mayo. She's the one that makes sure Dan has a support system in place for living arrangements while waiting for transplant and care giver support for after transplant, things like that. Well, she called to be sure all these things are still in place for Dan now that he is "quickly getting to the top of the waiting list." Hmmm....
Adam expected to train his replacement at Kiewit, then he expected to be transferred to his next assignment, probably in another state. Amy told us this weekend that plans have changed, the "replacement" is no longer with the company, and since Adam is the only maintenance engineer with this project (with many compliments from his boss, by the way) they will be staying in Arizona longer. Hmmm...
My good friend, Joy, told me last week that she was praying for Dan recently when she received a "divine revelation" that this will be Dan's year for getting a new liver. Hmmm....
Sounds like God is orchestrating something wonderful, like a transplant soon! Thanks for your prayers for us, and especially for the one who will be giving his/her life to give Dan a liver, and for the donor's family. Father, I pray that they all are Christians and that the donor's death would be quick and painless. I am continually reminded that You gave Your Son to give me life, His death was slow, painful, lonely, shameful, illegal, unjust...but He willingly gave His life for me, for the "joy set before Him" (Heb. 12:2).
One more thing. When you pray for us, please do not pray away the circumstances of our lives, as God is using everything to make us more like Him. Prayers for endurance and courage are most welcome. Always remember, when you pray to be in the center of God's will, Jesus was at the center of God's will, and it led Him to a cross execution, the silence of God, abandoned by His friends, even his Mom experienced helplessness and despair...but only for a short time as it says "weeping may remain for a night, but rejoicing comes in the morning." (Ps. 30:5) I am utterly convinced that everything happening to Dan and me is not even about us, but for others, someone alive now or years down the line. This brings such freedom, such release from worry, an awakening to abundant possibilities, an abundant life in the midst of pain and uncertainty.
Soaring still,
Debbie and Dan
Monday, April 28, 2008
Friday, April 25, 2008
Life goes on
Life continues to go on for us as we wait on the Lord to provide that precious but elusive liver transplant.
Dan has had a number of weeks now where his legs are no longer forming blisters and leaking. He saw the wound nurse this week and she said his legs are "healed". Most of the sores are gone and the skin looks much better. Dan says the swelling is greatly reduced in his legs also. Thank you Lord!
Other complications continue, the most annoying right now is the muscle tremors and cramps, particularly at night. Reducing the water pills have not helped and we fear this may be one of those things Dan will have to live with until he gets a new liver. Dan is pretty tired most of the time due to very little sleep, except for falling asleep uncontrolably during the day (due to the high ammonia level). Dan is even having a hard time talking on the phone due to muscle tremors in his hands and arms, so I will be sending him his cell phone headset and Bluetooth. Please pray that the tremors and cramps will ease up and allow him to sleep a little at night.
Dan is enjoying visiting with Pat today, Pat attended a conference on the mainland and he was able to stop over in Phoenix to visit Dan. Pat is wanting to watch the Lakers game with Dan's Dad, Dan (a Celtics fan) is not too excited to have 2 Laker fans in the house!
Soaring and waiting,
Debbie and Dan
Dan has had a number of weeks now where his legs are no longer forming blisters and leaking. He saw the wound nurse this week and she said his legs are "healed". Most of the sores are gone and the skin looks much better. Dan says the swelling is greatly reduced in his legs also. Thank you Lord!
Other complications continue, the most annoying right now is the muscle tremors and cramps, particularly at night. Reducing the water pills have not helped and we fear this may be one of those things Dan will have to live with until he gets a new liver. Dan is pretty tired most of the time due to very little sleep, except for falling asleep uncontrolably during the day (due to the high ammonia level). Dan is even having a hard time talking on the phone due to muscle tremors in his hands and arms, so I will be sending him his cell phone headset and Bluetooth. Please pray that the tremors and cramps will ease up and allow him to sleep a little at night.
Dan is enjoying visiting with Pat today, Pat attended a conference on the mainland and he was able to stop over in Phoenix to visit Dan. Pat is wanting to watch the Lakers game with Dan's Dad, Dan (a Celtics fan) is not too excited to have 2 Laker fans in the house!
Soaring and waiting,
Debbie and Dan
Tuesday, April 15, 2008
Update
Just a quick update. Dan's gone a few weeks now without any leg sores draining, that's a big praise. And his voice sounds stronger today. He did see the doctor yesterday for the constant leg and body cramps, the doctor thinks it may be dehydration from the high dosage of water pills they prescribed, so they decreased them slightly. If this doesn't help, the doctor said Dan may have to live with this until he gets a new liver. His MELD score is still 20. And Dan got the transfusion a few weeks ago and as predicted, he is quite jaundiced with a higher bilirubin count.
In His Time,
Debbie
In His Time,
Debbie
Subscribe to:
Posts (Atom)
