Friday, May 30, 2008

Update as of Friday May 30, 4pm AZ (1pm Hawaii time)

Today's been an eventful day. Looks like Dan will be in the hospital until at least Monday, the doctors want him fully alert before he goes home, and praise God he is so much better today. So, I'll be staying in Phoenix until next week sometime. Here's more.

* No more bleeding events from the lungs. In fact, here's "wow!" number one: the pulmonary doctors said after all the scans and exams that Dan DOES NOT have emphysema! I'm sure the past few years of weekly IV treatments at Kaiser helped, but we choose to believe in Divine healing!
* They redid his labs today because now the doctors think the bacterial infection was contaminated. They also did a CT scan of his sinuses in case he has an infection or whatever, something that may be tied to the nose bleeds and/or the blood in the urine. The urologist is doing more cultures looking for anything rare, strange or whatever, and they may want to do another scan of the bladder later on, this does not seem to be a big concern to them.
* Blood sugar is still a little high, so they started giving him insulin injections. They still think this is elevated due to the stress of everything, and Dan can now eat a "hepatic" diet meaning very low protein. Sorry Dan, no more portuguese sausage or soda for a while!
* The 2 units of blood they gave him yesterday has elevated the blood count nicely. Ready for "wow!" number 2? Since the transfusions, those "Pac Man" antibodies have gone to work resulting in an elevated bilirubin count, this is one of the 3 labs used to determine his MELD score, and now his MELD is 25 -- the liver doctors have decided to reactivate him on the transplant list for a window of 5 days at #1 on the list, if an organ comes in, they will transplant him! If not, his MELD will go back to 21 and we continue to wait. So, it is entirely possible that he could get his transplant by June 3!!!!! Dan calls this his "wonder window" and if God chooses to bless us with this gift, we will shout Praise God from the rooftops! And if He chooses not at this time, we will still praise Him, for we really want God's very best, and if waiting longer or if taking Dan Home is what's best, we are ready.

The sweetest part of the week has been the heart to heart talks Dan and I have had about everything, and the prayer times we had today (Dan calls it our "aloha time" - aloha meaning love not hello or goodbye). Our good friend Carlye is right: somehow, we are living in some kind of crazy grace! Praise God for the wonderful time I shared with Amy talking about God, hope, and that crazy grace. Amy is more convinced than me that God is using all this for someone else, maybe many years down the line. Hearing her talk about her faith in God warms this mother's heart!

Thanks for your prayers and comments left on this blog. I'll post more updates tomorrow. We love you!

Debbie and Dan

1 comment:

Anonymous said...

Just want you to know I am praying that you will receive the liver within this week. I know you are more than ready and I waited long enough for both of us. Just prepare for a lot of new adjustments in your life afterwards, but they will seem minor compared to what we have gone through prior to transplant.
Wanda