Can't believe it's August already. Dan's MELD is 29 and he's still #1 on the hospital waiting list. He's been weaker the past several days, walking and talking a little "hamajang" (not quite right) so Mayo will start checking his red cell count tomorrow, if it's low again he'll get another transfusion. He's also having more bouts of stomach pain after eating, complications from the cirrhosis. We're thankful his legs, still swollen, are not leaking anymore, though we continue to watch a few blisters developing. Per Mayo, on the days he sleeps most of the time (another complication of the encephalopathy from the high ammonia levels), he needs to walk at least 2 times a day for at least 10 minutes each. We've done this, walking laps in the house. Dan is pretty tired these days, so we only get out on Tuesdays and Fridays to Mayo for labs, then breakfast at the cafeteria. When Dan's folks are home, I can run out to Walmart or the mall for a few hours, and when Dan's sister Debbie and the kids come over to swim, I'm out there with them - love it! Praise God for Wally and Lorrie and our Mililani Baptist ohana that continue to love on my Mom in Hawaii.
I've been thinking about this long wait, how I don't get God's timing. God reminded me of an important verse describing an important part of His character: "But do not forget this one thing, dear friends: With the Lord a day is like a thousand years, and a thousand years are like a day. The Lord is not slow in keeping his promise, as some understand slowness. He is patient with you, not wanting anyone to perish, but everyone to come to repentance." 2 Peter 3:8-9 NIV. A good friend reminded us that God is surely continuing His work in and through us, these verses confirmed that. In fact, we've been praying for the donor and family to be Christians, these verses made me think that what seems like God's slowness may actually be His patience and plan to bring the donor and family to Himself before the transplant. At least I pray this is true. So we continue to wait, rejoicing in God's amazing grace and love and His perfect plan for our lives.
Aloha from the desert,
Debbie and Dan
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2 comments:
Thanks for teaching us and always pointing us to Jesus even in the toughest times....He truly shines through...continuing in prayer..Roger and Joy
Amen!
So many have been praying for the donor family asking God to grant the family time to share cherished words. You so poignantly remind us God may very well be answering those specific prayers!
We'll never be able to thank God and you enough for allowing us the privilege to journey through this time with you.
Much love,
Kristy & Derek
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